Disability Studies and Mad Studies
This working group in disability studies and mad studies provides a forum for scholars from around the world and in a number of different disciplines to come together to share their work. It is also meant to provide people who are new to the fields with an entry point into key work in the fields. The group is open to specialists and non-specialists, and interested students. The group will discuss works in progress and published works, and it will provide a forum for specialists to lead seminars and give lectures in their area of expertise. The history of science, technology, and medicine is critically important in disability studies and mad studies, but students and scholars from those areas of study rarely have the opportunity to engage with one another’s work in ways that are both meaningful and lasting. This working group will begin to remedy that situation by providing a virtual forum for students and scholars to come together to share their work and have conversations with one another.
Closed Captioning for the Working Group on Disability Studies and Mad Studies is made possible by the generous co-sponsorship of the Center for Disability Studies at the University at Buffalo.
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Participants at Consortium activities will treat each other with respect and consideration to create a collegial, inclusive, and professional environment that is free from any form of discrimination, harassment, or retaliation.
Participants will avoid any inappropriate actions or statements based on individual characteristics such as age, race, religion, ethnicity, sexual orientation, gender identity, gender expression, marital status, nationality, political affiliation, ability status, educational background, or any other characteristic protected by law. Disruptive or harassing behavior of any kind will not be tolerated. Harassment includes but is not limited to inappropriate or intimidating behavior and language, unwelcome jokes or comments, unwanted touching or attention, offensive images, photography without permission, and stalking.
Participants may send reports or concerns about violations of this policy to firstname.lastname@example.org.
There are no currently scheduled upcoming events.
May 10, 2022
Natalia Pamula, Work-in-progress (a book chapter draft)
This chapter analyzes a range of literary texts (non-fiction, young adult literature, disability memoirs) to examine representations of disability futures in post-socialist Poland. Although produced over the span of twenty-six years (1995–2021), these futures are quite uniform in that they are privatized and, more specifically, familialized. A disabled future is secured only by a family and only within a family. Polish post-1989 literary texts show that the family is the only place that can guarantee a future for a disabled subject. Without a family or a mother, a disabled subject is utterly alone, whereas to live as the mother of a child with disability is to never be alone. As a result, these texts testify to the binding of the bodies and futures of a mother and her disabled child. In other words, in post-1989 Polish literature, a disabled child is imagined as a mother’s child. The birth of a disabled child oftentimes signals the end of a mother’s normatively understood future. Or, to put it differently, a mother’s future becomes intimately interwoven and attached to her disabled child’s future. These bindings of bodies and futures generate what I call a “violent intimacy” between a mother and her disabled child.
BIO: Natalia Pamula is an assistant professor at the American Studies Center at the U of Warsaw. She works on disability discourses and representations in Polish socialist and post-socialist culture. Her work has appeared in Aspasia, East European Politics and Societies and Cultures, and Canadian Slavonic Papers.
April 12, 2022
Cassandra Evans, Ph.D., Assistant Professor of Disability Studies at the City Univesity of New York's School of Professional Studies, will discuss excerpts from dissertation research, specifically the chapter"Occupying Time, Places and Spaces, Peer Work" from Asylum to Community and In Between: Examining the post-Deinstitutionalization Experiences of Individuals with Mental Disabilities in Suffolk County, New York and discuss how this is shaping a new work in progress: Five wives (a novel regarding disability justice and intersectionality).
My current work of fiction (Five wives) is in nascent stages and is being shaped by themes emergent from fieldwork I did for my dissertation. This work is also supported by the CUNY Faculty Fellowship Publication Program under mentor and author Bridgett M. Davis at Baruch College. Years after enthnographic studies I conducted with people on Long Island, New York, most of whom transitioned out of one of four New York State psychiatric asylums in the 70s, 80s and 90s, I am thinking about the lands those spaces inhabited along with lived experiences of indigenous people of the northern California region. I continued to find similar narratives in these two spaces--East and West--as well as shared experiences of settler colonialism, environmental racism, ableism and sanism. Simultaneously, discussions and submissions graduate students in my "Disability and Narratives" class continue to share with me, led me, or more so repositioned me to this project.
Set near Maidu First Nation lands of Northern California and Shinnecock of New York, Five wives is a historical novel illustrating rejection of people with disabilities from the ‘60s through 2000s. Characters’ experience marginalization toward children, indigenous people, and immigrants whose disability, gender, or non-citizenship deem them as “cause for exclusion.” Embodied intersectional biases toward sexual nonconformity, neurodivergence, and disability uncover how justice is skewed by various power systems aimed at silencing or erasing variance (Crenshaw 2016). Brother and sister main characters endure abuse, defective labels, gaslighting, and forced rehabilitation as they reveal universal truths about ableism, institutionalization, and trauma.
March 8, 2022
Conor Moynihan, PhD candidate, University at Buffalo (SUNY)
Curatorial Reflections on Variance: Making, Unmaking, and Remaking Disability
In this presentation, I discuss my exhibition Variance: Making, Unmaking, and Remaking Disability, which will be on view at the Rhode Island School of Design Museum of Art from January 29 through July 3, 2022. In forty works dating from the mid-1700s through today, these works ask us to consider how disability and illness are embodied and experienced, and how they have been represented by artists and deployed as visual tropes. These works foreground the ways that culture and art are shaped by physical, mental, and sensory differences that exist on the continuum of human variation. From moralizing, stereotypical historical representations of disability to more prideful modern and contemporary works, this exhibition highlights how disability is made, unmade, and remade towards new ends. Variance is primarily a permanent collection exhibition, and the process of developing this project involved exploring what in the existing collection speaks to disability culture and history but also strategic purchases to expand disability representation within the collection. For this paper, I will discuss the stakes behind this project, considering why it is important to discuss art through the lens of critical disability studies, and also the ways we have been working to make the exhibition and also the museum more accessible going forward. Ranging from artists like William Hogarth to Riva Lehrer, this exhibition aligns with the social model of disability and recognizes the value and history of disability culture while also digging in to the sedimentation of negative representations of disability that perpetuates stigma today. As a case study, I will discuss what I learned in the process of developing this project and how I hope to continue afterwards with more work on accessibility and diversity within disability arts and culture going forward.
Conor Moynihan is the Assistant Curator of Prints, Drawings, and Photographs at the RISD Museum and a Visual Studies PhD Candidate at the University at Buffalo (SUNY). His dissertation explores how contemporary artists engage with and critic the aesthetics of orientalism, primitivism, and exoticism, with a focus on queer, transnational performance- and lens-based artists. More broadly, his research interests include queer theory, disability studies, performance, and identity politics. His curatorial work includes exhibitions such as Drama Queer (2016; Vancouver, BC), Ill at Ease: Dis-ease in Art (2017; Buffalo, NY), and Three Acts, Three Scenes: Your Care, My Care, Careful Care (2018; Brooklyn, NY). He is working on two exhibitions to open at the RISD Museum in spring 2022: Variance: Making, Unmaking, and Remaking Disability and Presence and Perception in Contemporary Drawing.
February 8, 2022
Title: QueerCrip History and the 1960s Spectacle of White Appalachian Poverty Tours, Ryan Lee Cartwright
Abstract: This chapter from Peculiar Places: A QueerCrip History of White Rural Nonconformity (Chicago, 2021) examines how disability, sexuality, and gender intertwined in concerns about white Appalachian poverty in the 1960s. When poverty was “rediscovered” in the 1960s, racialized political concerns sent “poverty tourists”—politicians, journalists, social workers, volunteers, and college students—flocking to predominately white communities in West Virginia, eastern Kentucky, and other parts of the central and southern Appalachian Mountains. Michael Harrington and other 1960s poverty warriors attributed the social problems of white rural America to a muted form of mental and economic depression, saying that poor people were “maimed in body and spirit.” Even so, white men with temporary physical disabilities were the poster child for War on Poverty publicity, despite the fact that disability rarely healed according to curative time and most War on Poverty program specifically excluded people with disabilities. After offering a queercrip analysis of white Appalachian culture-of-poverty theory, I turn my focus to the mundane, material conditions of two specific poverty tours. In the first, I examine a controversial presidential visit to a poor white family who became fodder for gossip when the expected rehabilitation narrative was disrupted by the complexities of being poor and disabled. In the second, through a social worker’s account of the anxiety that poor white West Virginia men faced in navigating poverty bureaucracy, I consider how mental disabilities such as depression combined with labyrinthine bureaucracies to make poor people feel estranged. (Content note: discussion of familial CSA on p. 120)
BIO: Ryan Lee Cartwright is an assistant professor of American Studies at the University of California, Davis. Dr. Cartwright’s research focuses on disability, gender, and sexuality on the social and spatial margins. His first book, Peculiar Places: A Queer Crip History of White Rural Nonconformity (University of Chicago Press, 2021), maps racialized queer and disability histories of white social nonconformity across the rural US, from the 1910s to the 1990s. Cartwright’s second book examines how chronic illness came to be understood as a gendered, racialized “social burden” in the early-to-mid twentieth century US. His work has been funded by the ACLS, NEH, Smithsonian Institution, American Philosophical Society, and Hellman Family Foundation, among others. Prior to his appointment at the University of California, Davis, Cartwright was associate editor of MNopedia, a digital encyclopedia of Minnesota created by the Minnesota Historical Society.
January 11, 2022
Title: Picturing the Institution of Social Death: Visual Rhetorics of Postwar Asylum Exposé Photography
Abstract: This paper examines how photography shaped the American public’s perception of psychiatric hospitals during the immediate post-WWII period. I will analyze photographs that appeared in popular exposé articles of that period and that used photography as a visual aid for disclosing the poor conditions of state hospitals, intending to promote reform efforts focused on turning antiquated asylums into modern hospitals. Existing scholarship has mentioned how these photographs had a significant influence on shaping the public’s view of asylum conditions. Through a close examination of these photographs, I will argue that they often contained unintentional messages which stigmatized disabled people.
Bio: Shuko Tamao is currently a postdoctoral fellow at the National Museum of American History. She was also a postdoctoral research fellow during the 2020-2021 year at the University at Buffalo Center for Disability Studies. Her research areas are in 20th century American history and disability, with a focus on first-person experiences of institutionalization and memories associated with them. She is currently working on a manuscript project titled “Resisting Anonymity through Remembrance: A Narrative Examination of Postwar State Hospital Experiences” which uses material objects, oral testimony, visual culture, and other non-textual sources to recreate first-person narratives. With a background in public history, she is also co-writing an essay with Aaron Rubinstein about a range of issues specific to disability-related archival collections that prevent the voices of disabled people from being truly accessible to the public. This essay will be published in the collection “Cripping the Archive: Disability, History, and Power,” edited by Jenifer Barclay and Stefanie Hunt-Kennedy.
December 14, 2021
Chapter Title: Developmental Disorder, Racial Dissolution: Racial Typologies of Developmental Normalcy in Early Child Medicine, 1830 - 1870.
Chapter Description: This chapter argues that early texts on the physiology and pathologies of infancy and childhood reflected anatomical, physiological, and medical preoccupations with child disease and development as typological phenomena that were not generalizable across races. Instead, child development referred to a non-statistical “normal” that did not claim universality, but one that cohered within species or races. The first section analyzes medical treatises, with an emphasis on the developmental events most frequently associated with racial differentiation: cranial suture closure and puberty. The second section examines a wider range of medical, physiological, and ethnological texts to delineate how variable rates of development and the degree of synchronicity between competing developmental drives (i.e. physical and intellectual) generated racial hierarchies and threatened racial degeneration. More specifically, this section interrogates how “ethnic” classifications of idiocy and medical alarmism about precocious puberty and “puberty-as-crisis,” pathologized developmental timing and patterns in white children that were commonly accepted as typical in Black children. I argue that developmental norms actually constituted racial types, thus reframing developmental disorder as a threat to racial order. Finally, the concluding section contemplates how ecologies and epistemologies of anti/Blackness mutually reinforced one another in the antebellum U.S.
Kelsey Henry is a PhD Candidate in American Studies at Yale University, where she also received an MA in the History of Science and Medicine. Her work follows the legacies of nineteenth-century scientific metrics of human development and racial difference, metrics forged in the crucible of racial slavery, in histories of twentieth-century developmental science and biomedicine. She historicizes the production of developmental technologies and norms that are often perceived as race-neutral, like pediatric growth charts and developmental screening tests, interrogating the racial premises and parameters of developmental knowledge production and its material effects on Black life. Kelsey is a CHSTM Research Fellow for 2021-2022. Her work is supported by the Andrew W. Mellon Foundation and Yale’s Intersectional, Queer, and Trans Materialisms Initiative, and she has previously received support from the Dean’s Emerging Scholars Fellowship and the Ford Foundation Predoctoral Fellowship. She is involved in disability studies programming and disability justice initiatives at Yale and beyond, as a co-organizer of Yale’s Disability Studies Working Group, the Assistant Editor of Disability Studies Quarterly, and a co-host of the Disability History Association Podcast.
November 9, 2021
In The Distance Cure: A History of Teletherapy, Hannah Zeavin argues that, far from being a recent concern driven by the COVID-19 pandemic, teletherapy is as old as psychoanalysis itself. Starting with Freud's treatments by mail, psychotherapy has operated through multiple communication technologies and media. These have included advice columns, radio broadcasts, crisis hotlines, video, personal computers, and mobile phones; the therapists (broadly defined) can be professional or untrained, strangers or chatbots. In The Distance Cure, Zeavin proposes a reconfiguration of the traditional therapeutic dyad of therapist and patient as a triad: therapist, patient, and communication technology.
In "The Far Voice," Zeavin discusses the rise of the suicide crisis hotline (originated by Protestant clergy) in England and the United States in the 1950s and 1960s and investigates how this service first became thinkable, and then widely adopted and used. She redescribes the hotline as psycho-religious in origin and intent, rather than as the secular service it has usually been assumed to be. She argues that these services, in their use of the peer-to-peer modality, radically upset former regimes of pastoral care and counseling, as well as those of psychodynamic therapy. Hotlines generate a new, hyper-transient frame for the helping encounter, removing nearly all the traditional aspects of the therapeutic setting except for speech and listening. At the same time, some hotlines devalue the need for expertise and rescind the fee associated with that expertise to protect callers; they use anonymous interactions to shield users from the careral imperative. They challenge every clinical concept associated with the structure and dynamic of the analytic encounter. It is contingent, it is not in person, and requires (or permits) a distanced intimacy with no guarantee of repeating; and it makes use of the phone—an appliance paradoxically thought of as capable of bringing people together and as responsible for their greater alienation.
Hannah Zeavin is a Lecturer in the Departments of English and History at the University of California, Berkeley. Additionally, she is a visiting fellow at the Columbia University Center for the Study of Social Difference. Zeavin’s first book, The Distance Cure: A History of Teletherapy is now out from MIT Press, with a Foreword by John Durham Peters. She is at work on her second book, Mother’s Little Helpers: Technology in the American Family (MIT Press, 2023).
October 12, 2021
Title: Jim Crow in the Asylum: Psychiatry and Disability in the American South
In the United States plantation system, psychiatric and medical discourses were central to the creation of beliefs about the alleged inferiority of the enslaved person in both body and mind. Physicians invented mental illnesses to pathologize normal reactions or resistance to the brutality of slavery. These ideas did not disappear at the end of the Civil War but continued to permeate the emerging profession of psychiatry into the twentieth century, creating an epidemic of trauma through the mistreatment of disability and mental illness. In this project I draw on extensive archival sources to show the ways that Southern psychiatric hospitals in the mid twentieth century had become home to many thousands of Black patients with mental and physical disabilities, where treatment and care was custodial at best, violent and abusive at worst. From the process of admission, to misdiagnosis and lack of care, psychiatric hospitals in the Jim Crow South were no place of asylum for Black patients. They functioned as symbolic and actual spaces of institutional terror, approached by Black communities with caution. Yet they were also the scene of important Civil Rights activism in the 1960s which revealed the ways that psychiatry functioned as a tool of white supremacy. This activism led to the end of segregation, but could not fix the racism that underpins the provision of mental health and disability care today.
Kylie Smith is Associate Professor and the 2021-2022 President’s Humanities Fellow at the Fox Center for Humanistic Inquiry at Emory University. Kylie teaches the history of race and US health care in both the School of Nursing and the Department of History at Emory. Her previous book “Talking Therapy: Knowledge and Power in American Psychiatric Nursing” was published by Rutgers University Press in 2020 and was awarded Book of the Year from both the American Journal of Nursing and the American Association for the History of Nursing. Her new book project called “Jim Crow in the Asylum: Psychiatry and Civil Rights in the American South” is supported by a grant from the National Library of Medicine.
September 14, 2021
Jenifer L. Barclay, “Family Matters: The Social Relations of Disability in Enslaved Families and Communities.”
The meeting will be a discussion of a chapter entitled “Reimagined Communities: Disability and the Making of Slave Families, Communities, and Culture” from Barclay's first book, The Mark of Slavery: Disability, Race, and Gender in Antebellum America (University of Illinois Press, 2021). The chapter examines the overlooked and unacknowledged roles of enslaved people with disabilities in contributing to the social cohesion of their vulnerable families and communities. Historians of slavery have noted that factors like age and gender shaped the daily lives of enslaved people, but ignored the social relations of disability in these spaces. Because they were devalued by slaveholders, enslaved people with disabilities were less likely to be sold and more likely to contribute important family and community-based labor. Yet ableism also existed within slave communities that sometimes left them marginalized and excluded.
Barclay is an Assistant Professor in the Department of History at the University at Buffalo. Her work has been supported by fellowships at the University of Virginia’s Carter G. Woodson Institute and Case Western Reserve University. Barclay is an associate editor for Review of Disability Studies and her first book, The Mark of Slavery: Disability, Race, and Gender in Antebellum America, appears in the University of Illinois Press’s “Disability Histories” series. With Stefanie Hunt-Kennedy she is editing a collection, 'Cripping the Archive: Disability, History, and Power', and is working on her second project, 'Between Two Worlds: Disability and Segregation in Southern Education from Emancipation to Integration'.
June 8, 2021
Kateřina Kolářová, "Rehabilitative Post-Socialism: Disability, Race, Gender, and Sexuality and the Limits of National Belonging" (forthcoming with University of Michigan Press).
The meeting will be a discussion of a chapter entitled “The Inadaptable (Non-)Citizen: The Racialised Logic of the Provisionally Permanent Abandonment."
Kolářová teaches at the Department of Sociology in the Gender Studies program, Charles University, Prague. Her work engages intersections of disability, crip, queer and race theories. Most recently, her manuscript Rehabilitative Postsocialism: Disability, Race, Gender and Sexuality and the Limits of National Belonging won the 2019 Tobin Siebers Prize for Disability Studies in Humanities (forthcoming with Michigan University Press). Together with Martina Winkler she co-edited Re/Imaginations of Disability in State Socialism: Visions, Promises, Frustrations (forthcoming with Campus Verlag in 2021).
Please join us. All are welcome. We will provide CART. Please contact Mike Rembis if you have any questions or concerns, or you need further accommodation.
Jenifer Barclay is an Assistant Professor in the Department of History at the University at Buffalo and a member of the university’s Center for Disability Studies. She specializes in 19th century U.S. history, the history of slavery, the history of disability, race and global health.
Cassandra Evans is an Assistant Professor of Disability Studies at the CUNY School of Professional Studies. She specializes in environmental and feminist philosophy, medical humanities, and bioethics.
Katherine Ott, Ph.D., is a curator in the Division of Medicine and Science at the Smithsonian's National Museum of American History. She is the author or co-editor of three books and has curated exhibitions and published on such topics as the history of disability, medicine, polio, HIV and AIDS, skin, LGBTQ+, and scrapbooks. She received the 2016 Society for Disability Studies Senior Scholar Award, is an OAH Distinguished Lecturer and teaches a graduate course in American Studies at the George Washington University. Ott tweets @amhistcurator about her work.
Pamula is Assistant Professor of Cultural Studies and Disability Studies at the University of Warsaw, Poland. She specializes in Polish literature, American literature, and gender.
Mike Rembis is an Associate Professor in the Department of History at the University at Buffalo and the Director of the university’s Center for Disability Studies. He specializes in 19th and 20th century U.S. history, the history of psychiatry, the history of institutions, the history of eugenics, the history of disability, and mad people's history.